Our Christmas 2015 newsletter is now available for download here
Date: 23 Dec 2015 - 08:32 AM
CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops...........we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and funds for our cause AND be in the world record books!!!
You can also register via this link:
Date: 08 Dec 2015 - 03:33 PM
Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it's complications.
The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too.......here's how:
Make a short video of yourself undertaking an activity or sport that makes you breathless and then say 'I'm Breathless 4 Babies to raise CDH awareness' then post your video on social media and our facebook page using all the hashtags
Don't forget to tweet, instagram, pin and blog about CDH all this month too! Just do whatever you can to help.
Date: 01 Jun 2015 - 08:53 AM
Date: 21 Apr 2015 - 08:24 AM
Challenging CDH is the first event of its kind for families and medical professionals affected by Congenital Diaphragmatic Hernia.
The day will first and foremost bring families together to offer support, but it is also a day to talk about experiences with medical professionals, to educate each other and to help to improve outcomes for CDH patients and their families and carers. There will also be activities for the children and parents/carers and the opportunity to tell CDH UK how you would like to see future support for families affected by CDH evolve and how CDH UK can develop and improve it's services to reflect this.
This should be a great day for all who attend and we also hope to have some free samples and other items available to purchase on the day. The event is free, but we have to charge for the lunch buffet and refreshments provided on the day. We look forward to welcoming you on the day!
Nearer to the event, a full itinerary will be provided.
Accomodation will be offered at the discounted price of £100 per double room and will be subject to availability.
Click here for full details and to ordere tickets: https://www.eventbrite.co.uk/e/challenging-cdh-tickets-15000232098
Date: 05 Jan 2015 - 02:09 PM
Our Winter 2014 newsletter is now available for download here
Date: 22 Dec 2014 - 10:53 AM
Wednesday 11th December 2014 saw MBRRACE UK launch it's first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK's response to follow. Please read the lay report and the full report here:
Date: 15 Dec 2014 - 05:46 PM
Date: 24 Oct 2014 - 11:44 AM
So UK drivers no longer need to display a tax disc on their windscreen, so we are asking you to display the FREE CDH Fundisc instead! This is a great opportunity to help CDH UK raise funds and awareness whilst on the move! We already sell our car stickers in our online shop and now you can download a FREE CDH Fundisc to help raise funds and awareness for our cause!
Date: 01 Oct 2014 - 11:34 AM
This year for CDH Awareness Day
Date: 24 Jun 2014 - 02:14 PM