CDH UK - The CDH support charity

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Christmas 2015 Newsletter

Our Christmas 2015 newsletter is now available for download here

Date: 23 Dec 2015 - 08:32 AM

Do you want to be an official Record Breaker? Then read on….........

CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops...........we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and funds for our cause AND be in the world record books!!!

To register and obtain an information pack, please email .(JavaScript must be enabled to view this email address) without delay! Remember places won't be avaialble for long! 

You can also register via this link:

https://www.skylineregistrations.co.uk/parachuting/booking.aspx?clientid=62165&type=block&v=3515

Date: 08 Dec 2015 - 03:33 PM

CDH Awareness Month is June!

Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it's complications.

The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too.......here's how:

Make a short video of yourself  undertaking an activity or sport that makes you breathless and then say 'I'm Breathless 4 Babies to raise CDH awareness' then post your video on social media and our facebook page using all the hashtags 

#CDH

#Breathless4Babies

#ChallengingCDH

If you prefer something less strenuous, then hold a Bake 4 Babies cake sale at work, at school........anywhere you like if fact. Contact us for a free fundraising pack at .(JavaScript must be enabled to view this email address)

Finally for CDH awareness Day on the 28th June we would like to make a video containing what CDH means to our families and to tell the world how it impacts on babies, children and adults and their families. Simply record your self saying just the 3 words that describe CDH to you and then send the video in to us by emailing .(JavaScript must be enabled to view this email address) or by inboxing it to our facebook page (not directly on the page time line please). We will then edit all of the clips together to make one video.

Don't forget to tweet, instagram, pin and blog about CDH all this month too! Just do whatever you can to help.

 

 

Date: 01 Jun 2015 - 08:53 AM

AGM

Public Notice

CDH UK The Congenital Diaphragmatic Hernia Charity is holding its AGM on Sunday  May 10th  at 1 pm
Venue  Leicester Forest East services 
J21 LE3 3GB
All welcome
Any questions can be made in writing to the Committee and must be received no less than 2 weeks prior to the AGM date.

Date: 21 Apr 2015 - 08:24 AM

‘Challenging CDH’ Event - a day of education and support

Challenging CDH is the first event of its kind for families and medical professionals affected by Congenital Diaphragmatic Hernia.

The day will first and foremost bring families together to offer support, but it is also a day to talk about experiences with medical professionals, to educate each other and to help to improve outcomes for CDH patients and their families and carers. There will also be activities for the children and parents/carers and the opportunity to tell CDH UK how you would like to see future support for families affected by CDH evolve and how CDH UK can develop and improve it's services to reflect this.

This should be a great day for all who attend and we also hope to have some free samples and other items available to purchase on the day. The event is free, but we have to charge for the lunch buffet and refreshments provided on the day. We look forward to welcoming you on the day!

Nearer to the event, a full itinerary will be provided.

Accomodation will be offered at the discounted price of £100 per double room and will be subject to availability.

Click here for full details and to ordere tickets: https://www.eventbrite.co.uk/e/challenging-cdh-tickets-15000232098

Date: 05 Jan 2015 - 02:09 PM

Winter 2014 Newsletter

Our Winter 2014 newsletter is now available for download here

Date: 22 Dec 2014 - 10:53 AM

CDH UK responds to the MBRRACE-UK Confidential Enquiry into CDH at Birmingham NEC

Wednesday 11th December 2014 saw MBRRACE UK launch it's first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK's response to follow. Please read the lay report and the full report here:

LAY SUMMARY

https://www.facebook.com/l.php?u=https%3A%2F%2Fwww.npeu.ox.ac.uk%2Fdownloads%2Ffiles%2Fmbrrace-uk%2Freports%2FPerinatal%2520Deaths%2520Lay%2520Summary.pdf&h=5AQEgIRbf

FULL REPORT
 

Date: 15 Dec 2014 - 05:46 PM

Temporary disruption to Supportline

We are experiencing technical difficulties during a transferral of telephone services and this has resulted in our supportline being temporarily unavailable. For urgent support please email .(JavaScript must be enabled to view this email address) otherwise we hope that our lines are back to normal within the next 24 hours.

Date: 24 Oct 2014 - 11:44 AM

Display your FREE CDH Fundisc!

So UK drivers no longer need to display a tax disc on their windscreen, so we are asking you to display the FREE CDH Fundisc instead! This is a great opportunity to help CDH UK raise funds and awareness whilst on the move! We already sell our car stickers in our online shop and now you can download a FREE CDH Fundisc to help raise funds and awareness for our cause!

Right Click on the image to save it to your desk top or phone and then simply print is off and display in your old tax disc holder. If it prints out the wrong size, please email .(JavaScript must be enabled to view this email address) for a pdf version.

Date: 01 Oct 2014 - 11:34 AM

CDH Awareness Day Campaign

This year for CDH Awareness Day

Date: 24 Jun 2014 - 02:14 PM

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